So, this past Monday, we met with our pediatrician to get the process started for Marcus, Jr for Dr. Goldberg’s protocol. There are a few more pieces that need to be put into place and then she will order blood work for him.
In the meantime we have started with step one of the protocol which includes eliminating allergins from the kids diets. This includes ALL supplements. We have been doing the diet elimination for the past month, we have eliminated supplements for the past two weeks, and the changes that we have seen have been pretty good.
Marcus, Jr’s seizures are now almost non-exisisent only happening about once every other week, no more four-five seizures in a day. Jai Lynn’s cognitive abilities have increased, she seems more focused and clear.
We have also gotten more verbalization out of Marcus, Jr. Just this weekend when I asked Jai Lynn did she want water he said “me too.” He just seems to be more aware of what is going on.
So we are working on the first step of Dr. Goldberg’s protocol which is changing our diet and that is working quite well so we can’t wait to add the other pieces so that our children can experience a true healing from this virus.
So, I will try to post everyday as this is not only to be a help to other parents but also a log and diary for us to see where our kids have been and where they are going.
So the tidbit that I want everyone to take today is this:
“Step one is always dietary elimination (including most nonpharmaceutical supplements). The key to helping the immune system is not how many different products and things can one throw into it, but rather how many negative stimuli (primarily foods or other non-pharmaceutically pure ingested products) you can remove form the immune system, in turn allowing the immune system the first chance to start to become healthier” – “The Myth of Autism, Dr. Michael Goldberg and Elyse Goldberg, Chapter 7 page 91.
So parents this means stop giving your kids multiple vitamin therapies at once, start with one and build. Doing multiple vitamin and alternative therapies at once will not necessarily help your child. From personal experience we know this.
True story, when our son was having multiple seizures a day we where doing multiple vitamin supplements (not sure if they where pharmaceutical grade or not I’m guessing not). We where doing:
acetly l carnitine
Divine Child drink
and a few others those are just the ones that I can think of off the top of my head. We didn’t change what he ate, let him eat whatever. During this time Marcus, Jr had extremely bad gas, so along with his Neurofeedback therapist we discussed modifying his diet and taking out all gluten. As soon as we removed his main trigger (it seems to be regular spaghetti stick he likes to eat them uncooked) the seizures decreased dramatically. Once we removed the supplements they decreased even more and we got more language and clarity from Marcus, Jr. Yes he still has rough days, yes he still has problems using the language in his head, yes we still have a long way to go but that small step has allowed us to make progress.
So this is our beginning. I hope to have video up this week of the kids and their interactions, tomorrow I have to take some documents to their pediatrician and talk to her about ordering the neuroSPECT scans for each child.
This is step one in our journey, please stay with us.
Blessings and Recovery,