Updates 6/1/13

Autism

So, we just started Juice Plus again with Marcus and I split my dosage with Jai Lynn.  Marcus had been seizure free for about 2 weeks then they started up again on Wednesday of this week, he seems to be a bit under the weather but in great spirits. The seizures never last long and his recovery time is normal.

Autism Updates ~ This Week’s Treatments

So these past few week have been very minimal, the Divine Child Drink. That’s it, I have to get more clay but we did a castor oil wrap today and will do an epsom salt bath tomorrow as that is also a way to detox.  We haven’t been up to much.

 

Autism Updates ~ Kid Updates

Marcus Jr – He has be more communicative, he has been more focused and he has been more helpful.  He has been answering more questions almost having conversations! We have been able to have mini conversations with him if we are asking the questions.

Jai Lynn – Has been a bit more focused and has had the ability to control her emotions a bit better.  She has been communicating more also.

Mason- Has been talking and requesting more and has understanding what is being requested of him. He can count to 5 with assistance.

 

Autism Updates ~ The Future

My kids are healing more and more everyday.  Parents if your child has a different ability don’t allow anyone to tell you what they Can’t do or will NEVER be able to do.  You know your baby .

Until next time

Peace Love and Healing

Charmaine

 

To Vaccinate or not to Vaccinate that is the question

This is a touchy, touchy, touchy subject…vaccines.  Are they any good, are the parents not vaccinating crazy?  I believe (this is my personal opinion I am not anywhere near the medical profession but this is my gut feeling about how they affect my kids) in my heart of heart that vaccines are not the wonderful that the medical community, government and pharmaceutical companies would have you believe.  I think they were manufactured for people who didn’t have the time to be sick or have sick kids so they needed a quick fix. The drug companies realized that they could make money off of us and our “microwave” mentality and ran with it.  They began manufacturing drugs and vaccines to “keep you kids healthy” never mentioning diet, exercise (the stuff that requires some work) because we didn’t want to hear it.

I believe that vaccinating your child is your personal decision as a parent. I don’t fault those who do and I don’t think those that don’t are crazy, it’s your choice.  But I don’t, I seriously believe that my son’s issues stem from vaccine damage as his first seizure came after a round up of vaccines given to him by the U.S. military “doctors” and “medical staff”(oh boy do I use that term loosely we’ll talk about how the U.S. government cares for their service members and their families in a later blog) whew give me a minute too many feeling rushing (I see some forgiveness work in my near and immediate future on this one). in a period of three months my son had over12 (DTAP, Polio, Hib, Hep B, Prevnar all given at the SAME time in March, April and June of 2004)vaccinations that where given to him all while he had recurrent  double ear infections…(wait I need another minute to process this one)…Soon after the last go round he got super sick and then had a seizure , which when I remember back is the same type of seizure that he is having now.  When he was admitted into the hospital he was diagnosed with pneumonia and staph infection of the blood! It never occurred to anyone that something was extremely wrong with that picture.

I know that me as his mom should’ve stepped in but I didn’t have the knowledge that I had now and I was still apart of that mindset that  medical staff knew everything and that they actually had my child’s best interest at heart.  There only concern was a schedule and not the health and wellness of my child.

I say all of that to say this, if you do or don’t vaccinate know your why. Not to explain it to anyone else because it’s no one’s business if you do or don’t, but that explanation is for you. So that no matter what happens to your child good or bad health wise you know that you did all you could, you know that you were armed with the knowledge you needed to make a conscious decision for your child’s health. Please READ up on whatever you decided to do or not do, research, research, research don’t take ANYONE’S word for it.

I know that had I not vaccinated my son as well as pump him with antibiotics that his path would be much different than what it is now, and as a parent I have to forgive myself because I only did what I knew. My job now is to make him better.  That’s why I was always so tough on Marcus, Jr because I felt like I caused it, that it was my fault that he was having seizures, and he could talk or that he is in his own world and seeing the reflection of things you think you did wrong is painful.  I think that is the most painful part about having a child with a different ability, you feel in some way responsible. Now I’m not about to be popular for this next statement but here goes.

In a sense you are responsible for whatever your child’s current (note the word current) condition. I’m not talking solely the different ability itself but everything surrounding it. Stop babying your child saying what they can’t do or will never be able to do, because it sets a tone in the universe, then they take on the mindset that they are limited in life.  Stop dwelling on  what you “might” have or “might not have” done that’s in the past, how is being depressed helping your future or your child’s future?  I’m not saying you can’t have a sad day or a day that you are totally frustrated with the process, just don’t stay there it’s not healthy for anyone.

Great example of what I mean:

Marcus, Jr had impulse control issues, and I would always jump down his thought, yell at him, just basically sending him bad vibes, so that’s how he acted, no better no worse.  I always said to myself he will never get better he will always be doing this thing or that thing.  So he did, and the vicious cycle continued and it even caused other family members to join in and gang up on Marcus and how “bad” he was. One day I woke up and decided to shift my thinking about him and only feed him positive message because I didn’t like the mom in front of me or the kids that she was producing. I resolved that no matter what his abilities where I was going to prepare him to be his best by being patient and kind. And the kid that emerged is the kid I’m blogging about now, helpful, attentive, smart, loving, able to follow along in class.

So you see mom’s and dad’s thought hold A LOT of  power. More than you could ever imagine.

Feed your family thoughts of healing, kindness, love, compassion. Dish it out and you’ll be sure to get it back.

Send you Love. Health. and Wellness

Charmaine

 

New Updates 4-27-2013

This week has been a super crazy week for us.  My son’s school was on lockdown for the second time this year (http://www.mlive.com/news/detroit/index.ssf/2013/04/gunfire_in_harper_woods_leads.html) and he had seizures this week, 3 on Thursday, 4 on Friday and 2 today.  They appear to be tonic-clonic seizures(http://www.epilepsyfoundation.org/livingwithepilepsy/parentsandcaregivers/parents/infants/tonicclonic.cfm)

Which is more information than what the neurologist has ever given me.  If that is the case then the medication that he is on is not going to help (not like it really was anyway). So I’m looking into some natural methods to help him.  Other than the seizures he has been doing quite well but he we have a lot of work that we will be doing over the summer.

Jai Lynn has been doing……great as far as being able to verbalize and converse with us.  Today was very memorable.  She has a difficult time regulating her voice and she is not good with inflections and all that human stuff that we do.  She doesn’t get that smacking her lips or moaning are inappropriate behavior. Long story short, she got very upset  tonight because she was redirected by dad and it wasn’t “nice”. So, she begun to cry. So I seperated them (not literally  and I went into her room and we talked.  I gave her re-affirming statements to repeat, “I am beautiful, I am smart, I am loved” then I had her to tell me two things that she was thankful for today and she said that I made sandwiches and that she had a chocolate covered strawberries.  And that got her to smile, telling me what she’s thankful for always gets her to smile.  Once she calmed down she and dad made up and all was right with the world.  After dad left the room she and I talked for a minute.

She said “I have to worry about myself mom” and I told her yes that that her brothers where not her responsibility to care for and that she didn’t need to feel the need to always be concerned about what they did or didn’t do because mom or dad would always find out. Plus, she was a great big sister that loved and cared for her brothers and that she is doing a great job.

This summer with her I think social awareness skills and self-esteem are going to be on the top for learning this summer for her.

This is why I am homeschooling next year because although she’s learning academics (loosely) the social piece is…somewhat lacking.  She mainly has issues with self esteem and some depression.  I take ownership in some of the mental struggles that shes having, because I was having them also and I am working on them now.  So as I build myself up I build her up.  I want her to learn lessons now and not take 30 some odd years to get it.  That is way I am thankful that I am on this journey, I was meant to go on it now.  I’m happy that she and I are doing it together because it gives me the opportunity to be a true example.

So that is what is going on with us as of late.  I’m getting my cards ready for Mother’s Day and Graduation’s, I have vendor shows coming up so I am a very busy girl.

Until next time

Charmaine

Week Three “Making my Children Better” Challenge

So we are coming to a close of week three of the “Making my kids better challenge”  and this week has been the best of them all.  Here are the supplements that we are doing for our children this past week:

  • Serrapeptase 2 40,000 i.u.’s on Friday, Saturday and Sunday
  • Castor Oil Wrap Friday, Saturday Sunday
  • Clay Bath Sunday
  • Acetyl L Carnitine 1 per day 7 days
  • MRM Attention Gels up to 3 per day 7 days
  • Min Chex up to 3 per day 7 days
  • Niacinamide 1 per day 7 days
  • Chelated Molybedum 1 per day 7 days
  • Melatonin 1 mg tab per night 7 nights
  • Zeolite 1 tbsp per night 7 nights
  • Divine Child Drink 1 tblspn per day 7 days
  • NADH 1 tab 3x per week

So the gains/changes we have seen are as follows:

Marcus Jr.

  • More language that is appropriate
  • Teachers and aides reporting more focus in doing his work
  • Last time he had Seizure was Sunday, February 3, 2013 very brief quick recovery
  • Increased patience and ability to wait
  • Less frustration
  • In church on Sunday (yes he went after he had a seizure) he gave out high fives
  • He’s been helping me more in the kitchen
  • Been easier to re-direct
  • Been more affectionate
  • Asked dad, “Where is the remote” and it wasn’t a part of a “script” (no echolia)
  • He can now say how old he is

Jai Lynn

  • Less crying spells greater ability to breathe through unfavorable news
  • Greater ability to recall school day
  • Greater ability to follow directions without getting confused

Now, Jai Lynn and Marcus, Jr are two COMPLETELY different ends of the spectrum. His changes are often more drastic and easily seen hers are much more subtle. So as I think of things about either child I will be adding it here.  But both kids are doing very well.  I’m thinking that when we start doing everything on the protocol our gains will be even larger.

I will be doing more video for our YouTube channel(please email me for link and password) this weekend.  Would like to do video updates of both kids. The only kid going through growing pains is Mason, as he is almost two years old so ironically he is the most challenging child at this point. As both older kids are assisting with him and making sure he is taken care of and out of “trouble’.

This has been a great week.  We are moving upward and onward.

Love and Blessings

Charmaine

Side note: Because I have two kids that I have to do castor oil wraps for I warm the flannel up in the oven on 250 for about 15 minutes, let it cool and then apply, the heat lasts for about 30 minutes. It allows me to wrap two kids at once with an even heat.   My clay I have a dedicated blender to blend it in so it’s smooth.

 

Week One Updates

So we have been going strong for a week with Dakhari’s Protocol.  The only elements missing are the ever important probiotics but we have been doing well.  I have been doing probiotics via smoothies using greek yogurt but we don’t have keifer, raw sauerkraut,  kombucha or coconut keifer at this time will be getting some things together so we can make our own but we don’t have any left.

So for the past week we have been doing the following:

  • MRM Attention Gels – up to twice a day during school week up to three times during weekends
  • Min Chex – up to twice a day during school week up to three times a day during weekends 30 minutes before each meal
  • NADH – on Monday, Wednesday and Friday 30 minutes prior to eating
  • Divine Child Drink -1 Tablespoon every day (baby gets 1/4 tsp.)
  • Activated Charcoal – 1 capsule 1-2 times per day
  • Methyl B-12 – 1 tablet per day
  • Vitamin D3 – 3,000 i.u. per day
  • Chelated Molybdenum – 1 tablet per day
  • Niacinamide – 1 tablet per day
  • Serrapeptase – 2 capsules per day during the weekends only (Friday – Sunday)
  • Acetyl L Carnitine – 1 capsule per day
  • Castor Oil Wrap – we did one today and will do another tomorrow since they are out of school
  • Zeolite- 1 tablespoon each night
  • Epsom Salt bath – Marcus had one on Wednesday with 2 cups of Epsom Salt and both kids had one today with 1 cup of Epsom Salt after their Castor Oil Wrap
  • Clay Bath – I gave Clay Baths last Saturday they will receive one tomorrow
  • Melatonion – 1 1mg tablet 30 minutes prior to bedtime
  • For Marcus only – Vimpat 12 mL 2x per day

So some of the gains we have seen this week:

Jai Lynn:

  • Decreased emotional outbursts
  • Increased understanding of what is being told to her
  • It seems as if her memory has gotten better

This week I will begin to track her academic and social progress.  Going to try and get her involved in some youth activities at church and try to find out more on the girls in her class. Will be adjusting the working binder tomorrow (now that I have ink in my printer) with checklists so I can graph out how she’s progressing.

Marcus, Jr.:

  • He is responding appropriately to questions asked of him
  • He seems to have a greater understanding if what is going on

Although, getting him to sit through a meal is still a challenge he will still sit.  On Saturday dad asked him where my computer mouse was, Marcus, Jr said, “Right there” and reached behind some paper and handed it to me.  I then told him thank you and he said you’re welcome.  In church today they had an assignment where they had to write who or what they where thankful for and here is Marcus, Jr’s reply, the teacher said he did it himself! It has been two weeks and 4 days since his last seizure, I think this is the longest time, he has a neurology appointment this week so we have to get some test results and see what our next course of action is.  He has been a bit more edgy at times it seems only when he is trying to communicate something otherwise he has been very happy as usual.

 

This week we will be tracking his attention, focus, hyper activity, academic progress, and social skills.

Mason:

This has been a tantrum week this week as everything no causes him to fall on the floor and cry.  We have been reading with him this week and he follows along with his finger and tries to repeat the words you say as you read.  He has been trying to have conversation (at least in his mind) and we are still working on not eating pens, markers or drawing on walls.  We started potty training (kind of) on Friday, he was happy to be in underware but continued to squat.  Because I haven’t potty trained anyone in a while I will need to read up on it 🙂

Coming up in the next month or so we will be trying some new supplements that I have discovered at a Wellness Retreat held by the church we attend. There will be a blog on all of the great resources from that retreat tomorrow.

Love and Blessings

Charmaine

 

What Do I Do?

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In our world of special needs resources and treatments abound (especially in the world of Autism). The problem is choosing which resources to study and which treatments to use. Rarely in my world does just one treatment work because children on the spectrum (Autism, ADHD, OCD etc) are often suffering with several different things at once. You often can’t work on gut issues without working on the immune system, you often can’t just work on the immune system without first without making dietary changes.

So I say that to say this:

Never, ever, ever allow any source to tell you that ONE thing is going to work, that one thing will cure your child, especially if it is a pricey or questionable treatment.  The logo for autism is a puzzle piece for a reason. So below are some tips for parents new and old to the game.

  • Thoroughly research any and all treatments that your child will receive to see if it will be beneficial to your child
  • Remember that it is called a spectrum disorder for a reason, EVERYONE”S response to treatments will be different because of where they are on the spectrum.
  • Learn all you can about your loved ones different ability
  • Join a parent or support group
  • While your child is doing any treatment document, document, document. That is the only way that you will know for certain if a treatment or IEP item is working like intended
  • Take time out for yourself at least once per month, doing so will allow you to rejuvenate and be ready for battle
  • Have someone you can talk to, be it a friend, a pastor, rabbi or therapist. You need to have someone to bounce your thoughts, fears and struggles off of.
  • Be that someone to talk to for someone else, doing that will actually make you feel less alone and is therapeutic for you.
  • Know and understand that you are not alone in your battle there are others that share either the same or similar struggles as you.

Under my Autism Resources page you will see many of the resources that I have used or currently use.  Some are State of Michigan, Wayne County or Grosse Pointe specific others are world wide.

I hope that some of these resources can help you and that this blog will encourage dialogue.

Love and Blessings

Charmaine

Questions and Answers

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As this year closes, it closes with more questions than answers.  For me that’s OK because that is more reading I get to do, more information I get to learn and more I get to share with parents that I meet.

I think that we in the special needs community often separate ourselves from the rest of the world not because we have to but, because we feel as though we have to and that is something we need to stop doing.  We need to stop saying how people don’t understand us and our journey when we won’t explain it to them or even invite them into our world. We have to be that change, we have to be the driving force that gets people to understand whatever our loved one’s disability is.  We are the one’s that have to get people to understand that every person on the Spectrum is not like “Rain Man” and that every person with Down’s is not “Corky” from Life Goes On. We need to get people to see beyond the stereotype placed out for the viewing public.

So as I type that I think what have I done in my community to change those perceptions of not only myself but of others. Have I attempted to learn more about other disabilities or have I retreated into my own world?  You see those of us that have public forums be it PTO presidents, PAC presidents or just bloggers we have a responsibility to think outside of the box, to break barriers and to inform the general public.

Now, to be honest I haven’t done much outside of Autism and that worries me that I am sticking myself into a box. I am starting to break some barriers and I’m trying to think outside of the box. There is so much that I want to accomplish next year and I want to do it well. I want to truly be a servant for special needs families in my area.  There is such a need for communication, unity and education in my area, we are so divided.  I’m sure we have some of the same problems that are going on all over this great country in regards to special education and care.  But in my utopia I would love for us parents to truly get together and support one another no matter the differences. To truly know that by me helping you I am not only helping me but helping the future of our community.

So for 2013 I have some huge plans, because I would like to connect with other parents on a more personal level and for all of us to exchange ideas, information and support at a place other than our district PAC meetings.  I want for us to be able to assemble just to connect and support, not because we’re rallying about something.

There are so many changes coming I know I’m up for the challenge are you?

Love and Blessings,

Charmaine