Updates 6/1/13

Autism

So, we just started Juice Plus again with Marcus and I split my dosage with Jai Lynn.  Marcus had been seizure free for about 2 weeks then they started up again on Wednesday of this week, he seems to be a bit under the weather but in great spirits. The seizures never last long and his recovery time is normal.

Autism Updates ~ This Week’s Treatments

So these past few week have been very minimal, the Divine Child Drink. That’s it, I have to get more clay but we did a castor oil wrap today and will do an epsom salt bath tomorrow as that is also a way to detox.  We haven’t been up to much.

 

Autism Updates ~ Kid Updates

Marcus Jr – He has be more communicative, he has been more focused and he has been more helpful.  He has been answering more questions almost having conversations! We have been able to have mini conversations with him if we are asking the questions.

Jai Lynn – Has been a bit more focused and has had the ability to control her emotions a bit better.  She has been communicating more also.

Mason- Has been talking and requesting more and has understanding what is being requested of him. He can count to 5 with assistance.

 

Autism Updates ~ The Future

My kids are healing more and more everyday.  Parents if your child has a different ability don’t allow anyone to tell you what they Can’t do or will NEVER be able to do.  You know your baby .

Until next time

Peace Love and Healing

Charmaine

 

IEP Drama

Normally I’m long winded but this my dears is going to be short and sweet.

Parents we must stop our thoughts about a thing always determine it’s outcome.  If you go into your child’s IEP dreding it and saying to yourself and others how exhausting it will be, how the teachers and administrators never cooperate. Then you will have and exhausting and unproductive IEP.

Parents we MUST stop this IEP Drama and stop being so negative.  It seems that often times in the IEP community we take pride in how horrible our IEP experience was and how much trouble it was and what administrator or teacher we had to get nasty with. For years I thought something was wrong with me because my kids have always had speedy, happy IEP sessions.  I then began to make stuff up to prolong the IEP so that I would have something to talk about.

What I realized is that is unnecessary.

Short tip:

Find the good in it all. When you find the good when you find your teams strengths when you play those up the negative will disappear  You create your world and not anyone else.

Create something great, trust me.

Wishing you Health and Wellness

Charmaine

Meetings for Moms!

So today was the monthly Maximizing Autistic Potential mom meeting and today it was held and my house.  I wanted to do something a little different and make some homemade cleansers.  In my search for multiple cleaners, thank God I found one on the Facebook page for Natural & Frugal:Raising 6 Kids    it was for an all-purpose cleaner! Well hot dog I thought this was exactly what I was looking for.  We ate laughed and made household cleaners.  I love things that I can do myself, that will save me money and that will stop any further toxification of my home.  I try and clean and cook green as much as possible and I try to  make our environment as healthy as I can when I can.  It was great to be able to share what I had learned with other mom’s so that they could change their environments also.

Long story short, the meeting was great, the ladies that attended were fun as usual and made some great food and we laughed way past closing time.  So if any of you wonder what is this mom’s meeting that she speaks of. What it is, is that each month a group of mom’s that have children with challenges namely Autism, come together.  We spend about 3 hours, talking about our children’s challenges  triumphs and just our struggles or triumphs.  It’s great to know that I’m not alone. We are from all walks of life but everyone is positive and supportive of one another, I love when a group of women can get together and  support one another.

If you are the parent of a child or loved one with a different ability please find a support group.  Many times we don’t think that connecting with other parents is important because no one understands who we are, who our children are and what we are going through.  When actually we are closer than we think.  Although, none of us experiences our recovery of our children in the same way we are able to celebrate with one another and lift each other up in times of struggle.

Connecting with another parent that either has, or has had a child with special needs will be vital to your sanity.

Wishing you Health and Wellness

Charmaine

 

 

Participation

It has come to my attention that our local Parent Advisory Committee (or PAC or Partnership for Different Learners or PDL) is in a bit of disarry.  Old Charmaine would have jumped in tried to save them her way, meaning great ideas but not so great delivery.

I’m not sure with all that I have going on that I really want to be bothered now (for lack of a better term) but I would love for the situation of the PAC in my local district to get better.  Am I really ready to stick it through and do it all myself? Because when you take on a project of that nature you have to be prepared at some point to do it all yourself.  I mean yes, there is parental involvement but things happen and people’s lives change. I’m not quite sure of what road blocks the current board has run into or what exactly is going on that makes them want to leave.

Part of it I know is that it is really only three women running the whole thing.  So because they really don’t have help the meetings are pretty much held (In my opinion) when it is convenient for them which is every other month.  I can’t blame them because I would do the same.  The other part is that because they have be doing it alone for so long that new help being offered is often confusing  (for lack of a better term)  They are really a great group of ladies.

I don’t think I’ll get involved as I once intended.  I will not be running for President, Vice President, Treasurer or Secretary.  Not right now.  I will though, help where I can and do what I can.  I will continue, to offer my support and services to whomever is in office. But, I don’t want a position of power, not really of interest to me at this time.  That’s not to say by our May meeting I’ll feel differently but for right now it’s a no.

I don’t need another position as I am a board member in several places in regards to Michigan Special Education so for now I’m good.

So many parents want their parent group to “give” them something. How about you give back? You don’t have to be a board member to call the President of your local PTO or PAC and ask do they need any extra help. Participate where you can. If your help is spurred then you have done your job of trying.

Until next time

Charmaine

Kid Update 5-2-13

So a lot has been going on with the kids lets start with Marcus Jr first:

Last week Marcus, Jr. had 3 seizures on Thursday, 4 on Friday and one on Saturday, since the seizures here is what has been going on.  His tolerance has increased. What I mean by this is that when we re-directed him he doesn’t meltdown for 5-10 minutes crying, screaming and throwing  himself from wall to wall.  For the past few days when redirected, he whines for a bit, grabs your hand looks in your face (so you can see he does’t like it) and then moves on once you acknowledge him. This morning when I got downstairs Marcus decided he wanted to watch T.V. before putting on his clothes and when I asked him to turn off the T.V. he did, he whined a bit and then went to put his clothes on and once his clothes were on he went about playing around upstairs before breakfast as normal.  Last night, I didn’t have to stand over him to get it done, I went into the kitchen to cook and when I remembered that I had sat him down to do his homework he was done!  His teacher and the classroom aide, also have noticed this new trend in class, stating that he doesn’t need to be continuously prompted to do work and that he just does it. they have also noted that  when redirected he is not upset for long.  So that is a huge plus.

 

Jai Lynn this past week spent her first go round in detention.  On Friday she didn’t go to school because Marcus was sleeping after a seizure and I didn’t want to wake him.  So she stayed home and she is ALWAYS OK with staying  home from school unless they are either doing something fun at school or going on a field trip.  So she goes to school on Monday and discovers that on the Friday she so gladly missed they had something special.  In her anger of  missing that perceived treat she dropped the “F” bomb (and I don’t mean forgiveness  and punched a young man that was standing next to her.  So when her teacher contacted me on Tuesday about what happened she asked me what did I want to do because no one had sent her to the office or even reprimanded her, but they did talk to her about it being bad. So I asked what would they have done with a neurotypical child and she informed me sent them to the office.  So I said send her to the office so that she could see the process of what happens after you hit someone who hasn’t done anything to you. So, Jai Lynn was sent to the office and received detention on Wednesday after school.  She and I had a conversation that she was not a bad person but a good person that made a bad choice and that we all make bad choices at times, but we have to ask for forgiveness and forgive ourselves and keep it moving and she got that. She also got that detention was the consequence for hitting someone when they had done nothing to you, she got that you don’t cuss in school, how do I know because when she came home on Wednesday after detention she stated “I don’t ever want to go to detention again, it’s too much work, no more hitting” lol I almost fell outta my chair.  We are working on some other pieces with her such as, bathroom etiquette, not spazing out when someone isn’t doing something according to the rules, teaching her the fine balance of being concerned about her own space and what she is doing and not always feeling the need to report everything that everyone else is doing.

This summer with both kids we will be working on social pieces as well as some academics.  Unschooling over the summer will be intense yet it will be fun.

Mason, smh is a typical two year old. I take my hats off to parents that have a house full of neurotypical kids.  You know sometimes in our world of different abilities we seem to think that parent of neurotypical children have it SOOO much easier, when they don’t. They face the same challenges that we do just in different ways, they have the same cares and concerns for their children as we do and they love their children just as much.  We in the different abilities community must stop with the stereotype that neurotypical parents don’t care about their children as much, and don’t have to do as much work as we do.  We must stop thinking that our brand of parenting gives us a special right to judge.  The reason why many of us are feel isolated is because we think we’re different, and we are all different and quirky in some way but not so different that we can’t connect with another parent because we don’t think they’ll get us. We’re all parents! I’m not saying not to have a support group of like-minded parents that are in a similar situation as you but don’t totally exclude those that are not like you either.

Wishing you Health and Wellness

Charmaine

 

 

Week One Updates

So we have been going strong for a week with Dakhari’s Protocol.  The only elements missing are the ever important probiotics but we have been doing well.  I have been doing probiotics via smoothies using greek yogurt but we don’t have keifer, raw sauerkraut,  kombucha or coconut keifer at this time will be getting some things together so we can make our own but we don’t have any left.

So for the past week we have been doing the following:

  • MRM Attention Gels – up to twice a day during school week up to three times during weekends
  • Min Chex – up to twice a day during school week up to three times a day during weekends 30 minutes before each meal
  • NADH – on Monday, Wednesday and Friday 30 minutes prior to eating
  • Divine Child Drink -1 Tablespoon every day (baby gets 1/4 tsp.)
  • Activated Charcoal – 1 capsule 1-2 times per day
  • Methyl B-12 – 1 tablet per day
  • Vitamin D3 – 3,000 i.u. per day
  • Chelated Molybdenum – 1 tablet per day
  • Niacinamide – 1 tablet per day
  • Serrapeptase – 2 capsules per day during the weekends only (Friday – Sunday)
  • Acetyl L Carnitine – 1 capsule per day
  • Castor Oil Wrap – we did one today and will do another tomorrow since they are out of school
  • Zeolite- 1 tablespoon each night
  • Epsom Salt bath – Marcus had one on Wednesday with 2 cups of Epsom Salt and both kids had one today with 1 cup of Epsom Salt after their Castor Oil Wrap
  • Clay Bath – I gave Clay Baths last Saturday they will receive one tomorrow
  • Melatonion – 1 1mg tablet 30 minutes prior to bedtime
  • For Marcus only – Vimpat 12 mL 2x per day

So some of the gains we have seen this week:

Jai Lynn:

  • Decreased emotional outbursts
  • Increased understanding of what is being told to her
  • It seems as if her memory has gotten better

This week I will begin to track her academic and social progress.  Going to try and get her involved in some youth activities at church and try to find out more on the girls in her class. Will be adjusting the working binder tomorrow (now that I have ink in my printer) with checklists so I can graph out how she’s progressing.

Marcus, Jr.:

  • He is responding appropriately to questions asked of him
  • He seems to have a greater understanding if what is going on

Although, getting him to sit through a meal is still a challenge he will still sit.  On Saturday dad asked him where my computer mouse was, Marcus, Jr said, “Right there” and reached behind some paper and handed it to me.  I then told him thank you and he said you’re welcome.  In church today they had an assignment where they had to write who or what they where thankful for and here is Marcus, Jr’s reply, the teacher said he did it himself! It has been two weeks and 4 days since his last seizure, I think this is the longest time, he has a neurology appointment this week so we have to get some test results and see what our next course of action is.  He has been a bit more edgy at times it seems only when he is trying to communicate something otherwise he has been very happy as usual.

 

This week we will be tracking his attention, focus, hyper activity, academic progress, and social skills.

Mason:

This has been a tantrum week this week as everything no causes him to fall on the floor and cry.  We have been reading with him this week and he follows along with his finger and tries to repeat the words you say as you read.  He has been trying to have conversation (at least in his mind) and we are still working on not eating pens, markers or drawing on walls.  We started potty training (kind of) on Friday, he was happy to be in underware but continued to squat.  Because I haven’t potty trained anyone in a while I will need to read up on it 🙂

Coming up in the next month or so we will be trying some new supplements that I have discovered at a Wellness Retreat held by the church we attend. There will be a blog on all of the great resources from that retreat tomorrow.

Love and Blessings

Charmaine

 

A Day Out!

Today was a day off for everyone and so I had to find something for the kids to do to keep them from driving hubby and I and each other nuts.  So last night I decided that today we would go bowling and then go out to lunch making it a full day of fun.  So we had breakfast, got dressed and headed out for the bowling alley that I had coupons for.

We got to the bowling alley and they had no open spots left, I had taken the kids in with me to hold the lanes and they both did a pretty good job when we had to leave.  Minimal whining and crying, and they quickly adjusted when we explained to them that we where going to another bowling alley that had the space.  We got to Harbor Lanes the kids where very excited. As soon as Marcus Jr got in he begun to take off his coat and shoes, I guess in his mind he was ensuring that we weren’t going to leave this bowling alley without him getting a chance to bowl.

Marcus Jr did so well bowling and listening and following directions.  He did a great job waiting his turn, he genuinely had a great time.  Jai Lynn not so well, she had a melt down the end of the first game because she didn’t win that first game (Mason won). So she begun crying and getting very disrespectful. Every time she gets upset or gets chastised she starts crying and saying she wants to die. Now I know she really doesn’t want to die but that’s the most dramatic thing that gets the biggest rise outta dad and I so she says it.  She spent the entire second game crying and spazzing out versus enjoying herself.  She was upset for the rest of the time at the bowling alley and when we got home she did a lot of stomping and crying so she was sent to her room while everyone else got comfortable and settled and I let her out when she calmed down so that she could eat. After that she was fine.  Mason  was great until the second frame of the second game he was exhausted and every movement made him whine he fell asleep on the way home.

Once everyone got settled and had lunch I ran Marcus, Jr a clay bath.  I noticed at bowling that his eyes were a little red and we have been putting a lot into him vitamin supplement wise so I know he need to be detoxed.  He spent at least 45 minutes in the clay bath and loved every minute of it.  It was good to see him happy and interactive.  Jai Lynn stayed in the clay bath for a little over an hour. Mason missed out on clay baths today because he was taking a nap.  But he will get one tomorrow.

Today everyone also took their dose of Zeolite and Activated Charcoal. I also purchased some goats milk soap and made my own lotion (cold pressed castor oil and coconut oil), I also purchased Eco Nuts to wash with and Wool Dryer Balls for the dryer, eliminating more toxins. Going to be looking into homemade cleaners, shampoos and some other things.  We are trying to heal not only our kids but ourselves from years of misuse.

Marcus, Jr also had morning meditation and had his energy cleansed with sage. Didn’t do the other two kids but will make it a point to do it tomorrow morning to give them a great start to their day. Tomorrow is also a yoga night so that will be another great way to help them deal with emotions and feelings learning to breathe and be thankful through it all.  Tomorrow we will also be starting in our homework binders so our week is moving along well.  So far Jai Lynn has obtained two stars on her chore chart and Mason one, still trying to make Marcus, Jr aware of his chart and to become interested in earning money and keeping his spaces clean.  Today we took all vitamin supplements on our vitamin chart and did the clay bath.  We have to get in some more coconut keifer as we are out.

So far so good on our journey doing this is allowing me to really look at deficits to really see where we need to work.  Please feel free to ask any questions if I don’t know the answer I will find someone who does.

Love and Blessings

Charmaine

Enjoy the pictures