Home Life with Special Needs

So our life has be full and wonderful at the same time.  It is almost the end of the school year and I’m excited and nervous at the same time because we will be embarking on full fledged homeschooling  and  so much more.  The kids have been doing great and they are also ready for the end of the year. This weekend has been a weekend of wonders as both children have been far exceeding the expectations that others have had for them.

We are working on using not only nutrition and supplements but the law of attraction to help them with some other things.  Marcus hasn’t had a seizure in over two weeks and we don’t expect anymore. His mantra is that he is “seizure free and healthy” I realized that although we treated him like a typical kid (pretty much) when it came to his health we where super sensitive and overbearing feeling like we had to protect him from “something” When I learned that I could change any condition, just via my thought process we decided to try it on Marcus,Jr.  So this is what has been going on for him this week.

His communication skills have been amazing over these past few weeks.  Marcus, Jr has been requesting what he want’s with little to no whining or fussing, his attention span as increased as well as his focus.  He has been extremely helpful and just more aware.

Jai Lynn  has been doing a good job of understanding what you say to her, she has been doing a good job of asking the right questions and not just asking questions to have something to say.

Mason has been doing a great job of communicating also.

All in all our kids are doing GREAT and we only see improvement for the future.

Until next time

Wishing you peace, love and health

The Fuller’s

 

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What’s Going On? 3/15/13

So, we are back on the protocol, kinda. This week has been a week of catch up for me still muddled with things I’ve obliged myself to. I honestly need to learn the lesson not to volunteer for anything during the week and during the day.  I don’t know what possessed me to volunteer to RUN the school book fair.  But, that’s neither here or there on to my beautiful wonderful kids.

This week has been challenging for my two older kids and the two year old is just progressing along.

Jai Lynn:

Just about everyday for the past week, Jai Lynn has been saying she doesn’t want to go to school. That it’s too noisy, too crowded and too big.  I first made sure that she wasn’t being bullied then I went into action. So we are having her leave a bit early from her classes before everyone else to lessen some of that hallway anxiety.  She’s been doing a great job with her work.  On her MI ACCESS test (a stupid test they give every year) she has improved greatly from last year she is almost at level in math and surpassed in reading.  We are still working on comprehension because although she can read at a sixth grade level, she can only comprehend at about a third grade level.  So I am working on tools that we can use for the reminder of the school year and summer to get it together for her and close the gap.

I’m not even going to say what supplements she took this week because I’m still not on track and some days we did everything we had and other days she did not. If she wasn’t in the supplement line in the am she missed out.  I am very short on time in the morning and don’t have time to track a kid down to take a supplement.  Once I get back into my “groove” it will get easier.

 

Marcus, Jr:

He has had a pretty good week. Teacher said he has been doing great on his work and that he can now count money up to $2.00 using coins.  He has had 2 seizures this week, both were at school, the first was on Tuesday and  he had to come home because I didn’t send in his usual jogging pants that he likes to wear after his seizures I sent in jeans. So that made him very upset and he had to come home.  Also, on that day he was still having nasal drainage and  some coughing.  So I brought him home, put him in his jammies and let him relax.  He had another seizure today, I took in the jogging pants so he stayed at school and had a pretty good day afterwards.  When he got home I noticed that his eyes are a bit red and that the tips of his ears are red and warm. The eyes are a sign of detox the ears are a sign of some sort of allergic reaction so he had some stuff going on.

Today in the grocery store he was very easily re-directed, when he started to get less focused he came back to me to hold my hand, he helped me out in the store (I do that to keep him busy and keep him from becoming  so distracted) and he listened so well.  I had to put this in writing so on a tough Autism/ADHD day I could come back to this post and see how far he has come and I could remember how great he is as a kid and how much potential he has.

Same supplement story for him.

Now today I did start the castor oil wraps back up for both and the coconut keifer.  I don’t know what I did to my milk keifer because it’s gummy, I think when it really warmed up for those few days last week it threw it off a bit. That change in temp messed with my keifer production. But we will get that back on track.  I have not started my kombucha yet hoping to start it this upcoming week.

I am learning to not beat myself up when I can’t follow the protocol like I should.  I do what I can when I can and I keep it moving.  The Divine Child drink has a new ingredient in it Tamarid and it helps detox the body from fluoride poisoning.  I have also taken out the toothpaste with fluoride, next is our water.

When you are battling Autism, Epilepsy, G6PD, or whatever your loved one faces, remember you are only human, and sometimes your going to miss giving a supplement or medication, everything is not going to be on schedule no matter how well you pencil it in.  Be OK with not being perfect, be OK with being tired, be OK with just wanting to enjoy your kids where they are sometimes.

Always try and find the good in your child, it’s there.  I’ve shifted my thinking for my sons, instead of saying, “he’s so bad” or “he’s never focused” or “he’s just a mess to “my God boy you are super curious, let’s help you discover” I’m learning to help them discover a world that they have never known.  It keep me from going mad and it keeps them wanting to learn and happy.  I work on my son’s a lot because they are the most work.  Even though the two year old isn’t Autistic or anything else he is still a handful.  Funny but sometimes it seems as if he and my older son are at the same level mentally so it’s often like having a two year old and maybe a 5 or 6 year old double teaming me. My daughter is “cool in the breeze” our largest struggle with her right now is, handling her emotions and keeping her cool.

The kids haven’t meditated or done yoga in a while so we have to get back on it soon, I think a lot of our issues stem from them not having that inner peace on lock.

Well, that is all that is going on with my family.  I’ll be starting classes soon along with running a business and a household. I’m learning to shift my thinking and get somethings together. I’ll do a me blog post later.

But kids are doing OK, we’re not where we would like to be but we’re sure as heck not where we where and that my friends is a great thing.  Looking forward to more gains with all three kids and looking forward to sharing our victories and defeats with you all.

Until next time

Wishing you Health, Wellness and Recovery,

Charmaine

Week One Updates

So we have been going strong for a week with Dakhari’s Protocol.  The only elements missing are the ever important probiotics but we have been doing well.  I have been doing probiotics via smoothies using greek yogurt but we don’t have keifer, raw sauerkraut,  kombucha or coconut keifer at this time will be getting some things together so we can make our own but we don’t have any left.

So for the past week we have been doing the following:

  • MRM Attention Gels – up to twice a day during school week up to three times during weekends
  • Min Chex – up to twice a day during school week up to three times a day during weekends 30 minutes before each meal
  • NADH – on Monday, Wednesday and Friday 30 minutes prior to eating
  • Divine Child Drink -1 Tablespoon every day (baby gets 1/4 tsp.)
  • Activated Charcoal – 1 capsule 1-2 times per day
  • Methyl B-12 – 1 tablet per day
  • Vitamin D3 – 3,000 i.u. per day
  • Chelated Molybdenum – 1 tablet per day
  • Niacinamide – 1 tablet per day
  • Serrapeptase – 2 capsules per day during the weekends only (Friday – Sunday)
  • Acetyl L Carnitine – 1 capsule per day
  • Castor Oil Wrap – we did one today and will do another tomorrow since they are out of school
  • Zeolite- 1 tablespoon each night
  • Epsom Salt bath – Marcus had one on Wednesday with 2 cups of Epsom Salt and both kids had one today with 1 cup of Epsom Salt after their Castor Oil Wrap
  • Clay Bath – I gave Clay Baths last Saturday they will receive one tomorrow
  • Melatonion – 1 1mg tablet 30 minutes prior to bedtime
  • For Marcus only – Vimpat 12 mL 2x per day

So some of the gains we have seen this week:

Jai Lynn:

  • Decreased emotional outbursts
  • Increased understanding of what is being told to her
  • It seems as if her memory has gotten better

This week I will begin to track her academic and social progress.  Going to try and get her involved in some youth activities at church and try to find out more on the girls in her class. Will be adjusting the working binder tomorrow (now that I have ink in my printer) with checklists so I can graph out how she’s progressing.

Marcus, Jr.:

  • He is responding appropriately to questions asked of him
  • He seems to have a greater understanding if what is going on

Although, getting him to sit through a meal is still a challenge he will still sit.  On Saturday dad asked him where my computer mouse was, Marcus, Jr said, “Right there” and reached behind some paper and handed it to me.  I then told him thank you and he said you’re welcome.  In church today they had an assignment where they had to write who or what they where thankful for and here is Marcus, Jr’s reply, the teacher said he did it himself! It has been two weeks and 4 days since his last seizure, I think this is the longest time, he has a neurology appointment this week so we have to get some test results and see what our next course of action is.  He has been a bit more edgy at times it seems only when he is trying to communicate something otherwise he has been very happy as usual.

 

This week we will be tracking his attention, focus, hyper activity, academic progress, and social skills.

Mason:

This has been a tantrum week this week as everything no causes him to fall on the floor and cry.  We have been reading with him this week and he follows along with his finger and tries to repeat the words you say as you read.  He has been trying to have conversation (at least in his mind) and we are still working on not eating pens, markers or drawing on walls.  We started potty training (kind of) on Friday, he was happy to be in underware but continued to squat.  Because I haven’t potty trained anyone in a while I will need to read up on it 🙂

Coming up in the next month or so we will be trying some new supplements that I have discovered at a Wellness Retreat held by the church we attend. There will be a blog on all of the great resources from that retreat tomorrow.

Love and Blessings

Charmaine

 

May, May the end of May

This month has been filled with many ups and downs as all my months are.  We started out the month strong with less seizures, more speech, less meltdowns, we ended it with still a lot of up but it seems as if we are back on the seizure yo-yo.  We are not really doing any supplements we are doing:
keifer
aloe vera juice

That’s it, we have really toned down STILL waiting on this pediatrician to order this darn blood work. But she keeps putting it off saying she needs to read the book more (for those not knowing what I’m talking about check out the blog posting Updates) information on what tests Dr. Goldberg is talking about to make sure that the tests she runs don’t overlap what he does.  For those that know me know that I am a VERY detailed mom, I didn’t just give her the book I gave her:

  • The book 
  • DVD’s of video of Dr. Goldberg that I downloaded off the internet
  • The questionnaire from page 98-101 for each child
  • The lab workup list from page 102
  • medical records
So you see people I just didn’t hand her a book and tell her what to do.  Now in saying that I do totally understand her wanting to do everything right and us not having to re do any tests or taking tests that are unnecessary. But, my patience is running thin because now I hopefully have a protocol that could be life changing for us all but we can’t start it because the doctor is not doing her part (in my eyes) It’s been a month since I introduced this information to her and still we wait.  I don’t know if she understands what is riding on this, maybe she does and I’m just…..for lack of a better word impatient. I just want my kids to be better.
So now we are back to multiple seizures but we have still have the increased speech and a little more focus, depending. Jai Lynn has been doing very well, I want to work on her socialization and math skills this summer. Found out at her last IEP that her reading skills are at grade level so we will also be reinforcing her reading this summer with the added comprehension piece.  We will be working on her writing skills and science and social studies.

So, that is where we are. Hoping to give progress updates over the course of the summer, school here in MI will be out in 12 days and I am so ready for it to be over as getting up and packing lunches is really getting on my nerves.

Until next time,
Blessings and Recovery
The Fuller’s